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Encephalitis in Children

E-learning Programme developed by The Encephalitis Society for children affected by Encephalitis and their families.

We are extremely grateful to Roald Dahl's Marvellous Children's Charity for their continuous support of our cause!

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Features & Benefits

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Who is the target audience for this Programme?

The E-learning Programme has two sections.
The first one, 'Adult Section', is aimed at all the adults who care for a child affected by Encephalitis (parents, grandparents, guardians or any other carers). It contains 9 modules which focus on: the illness and its consequences, the relationships with the family, friends and professionals involved in child's health, the educational issues, how to stay healthy and how to cope with emotional strains.

The second section,'Kids Section', is aimed at all children affected by Encephalitis age between 7 and 14. These age limits are not strict. If a Module is appropriate or not, depends very much on the learning and developmental stages of a child. This section has 7 modules which have been built around Gilley's experience of Encephalitis. Gilley the Giraffe will guide the child and teach them what is Encephalitis, how to stay friends, how to be good with their family and how to look after themselves.

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Disclaimer

In some instances where children are affected by Encephalitis the long-term prognosis can be very good, with many people coming through the illness with little or no difficulties at all. Therefore the difficulties stated in this E-learning Programme are not reflective of every situation where Encephalitis is involved and that some of the information stated may not be relevant to your situation.

The information provided on the website is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her physician. Should any of the information raise issues or give you reason for concern we would ask that you contact the office via our support line 01653 699599 or alternatively we can be contacted by email on support@encephalitis.info

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What are the aims of the Programme?

The E-learning Programme aims to improve the knowledge about Encephalitis and its consequences and so enabling children and their families to make sense of what has happened to them and know what to expect in the future; to help children and their families develop coping skills and as a result improve their confidence and self-esteem; to show the parents, carers and the children how to develop supportive networks around them and so reducing their isolation.

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Confidentiality

The Encephalitis Society has a duty of confidentiality to all users of our services. We will not use any information provided within this programme for any other purpose than that for which it was given; the information will not be passed on to any person or agency outside The Encephalitis Society without the express permission of the giver, or duly appointed representative, if the person is incapable of providing consent. The Encephalitis Society is registered under, and bound by, the Data Protection Act.

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How much information is enough?

Taking into account the emotional strain that a diagnosis of Encephalitis may bring coupled with the amount of information available through this training programme consideration may be required into gauging how much information is accessed at any one time.
Depending on where you and your child are on your Encephalitis' journey, some modules may not be appropriate to you and your child at this moment in time; you may want to take or re-visit some modules later on.

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Feedback and support

This E-learning Programme has been developed after consultation with our members, people affected by Encephalitis and the professionals who support them. It is our first e-learning project and we hope it is successful. We would be very grateful if you could fill in the feedback form at the end of each module and let us have any of your comments/ideas/suggestions.
If you need any further information and support please get in touch with us on +44 (0) 01653699599 or email support@encephalitis.info